Biggest struggle with a new disability: Long Covid

By Liz Seegert, next avenue

When Patricia Anderson caught Covid-19 at the beginning of the pandemic, she was lucky in a way. He never went to the hospital, even though his body temperature dropped to 93 degrees. In March 2020, many patients were told not to seek emergency care unless they had a fever of 104 degrees or higher. Covid-19 was a new emerging risk and at the time there were few avenues of treatment.

While the worst symptoms eventually subsided, Anderson never got better. She is among the 7 to 23 million Americans with long-term covid, a condition that can accompany symptoms such as shortness of breath, coughing, “brain fog,” fatigue and malaise. , which last 12 weeks or longer after the initial infection.

These persistent symptoms and resulting shortcomings pose a long-term challenge as employers and navigate an ever-changing virus.

The Centers for Disease Control and Prevention found that one in five covid survivors under the age of 65 has experienced at least one incident that may be similar to a past covid-19 infection. Among those over 65, the rate is one in 4. Their knowledge also shows that nearly three times more seniors aged 50 to 59 recently have prolonged Covid than people over 80 and older.

Experts believe that older cohorts could have more resistance thanks to a higher proportion of being fully vaccinated and reinforced; Younger cohorts may not be as protected. Post-Covid situations are found more in other people who have had a serious illness, but anyone who has been inflamed can suffer from those situations, even those with mild or asymptomatic Covid-19.

One of the demanding situations of prolonged Covid diagnosis is that there is no diagnosis and the symptoms may also be due to other underlying fitness conditions.

However, a study through the nonprofit Solve ME/CFS initiative, which supports studies on diagnostics, remedies, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), prolonged covid, and other post-infection illnesses, estimates that prolonged covid affects 10% to 30% of those infected; and more than a portion of patients have persistent symptoms six months after initial infection.

Millions of other people can have this disease for the rest of their lives.

Fatigue is the most reported symptom (80%), followed by post-exercise discomfort (72%) and brain fog (58%), according to the organization.

Despite his struggle with the ongoing effects of the virus, Anderson, an emerging generation specialist at the University of Michigan, has never stopped working. “I was afraid I wouldn’t have enough on leave because of health issues,” she said.

Her son has autism and she had to be there as a caregiver. However, constant fatigue and the inability to walk more than a handful of steps before having to rest also affected his intellectual health. “I am a very physically active person, I was very successful, I walked everywhere. “

Another major challenge was the ongoing brain fog, which Anderson said despite it all began coming out in December 2021, after about 20 months of suffering with likely undeniable responsibilities, such as completing full sentences.

“When it was the worst, I didn’t realize how bad it was. I couldn’t perceive that much,” he said. One of the scariest moments was when I couldn’t say my son’s name. “

Anderson was fortunate to be able to work full-time from home during the pandemic; She can take breaks and rest when excessive fatigue or cognitive disturbances interfere with her paintings. But the University of Michigan now needs painters to return to their offices.

And it’s complicated for the 65-year-old, who has been blogging about her ordeal for more than two years.

Anderson recovered enough to take the bus to work one day a week. His punctual supervisors were very attentive and made hotels as if to allow him to take breaks or lie down.

“It’s not that the brain fog doesn’t exist anymore. But I learned the things I want to do, like take short breaks, whether I feel tired or not, and I learned the cautionary signs,” she explained. able to become a full-time user again yet.

Anderson knows he’s luckier than many other employees. The nature of her jobs allows her to keep running away from home and control is willing to work with her. Many other people don’t have those options.

At the same time, employers are looking to figure out what they want to do to care for other people with covid long-term, whether it’s benefits programs, disability control, paid leave or short-term disability, according to Bryon Bass, senior vice president of disability and absence control at Sedgwick Corporation, one of the largest third-party benefit administrators.

“There are no standards, no protocols and other people are struggling to perceive what they can do and what they deserve to do,” he said.

The number of other people with disabilities due to the long covid can be potentially catastrophic for some industries. Between 7 million and 14 million U. S. employees U. S. citizens may have symptoms so severe that they will be disabled from their jobs in some form, Bass said.

In addition, the Equal Employment Opportunity Commission (EEOC) recommendation reinforces that prolonged Covid should be considered a disability under the ADA’s definitions: genuine physical or intellectual disability that particularly limits a major life activity; A history or record of a genuine disability (such as cancer in remission) or considered as a user with a disability through the employer.

One caveat: Not all impairments will constitute a disability under the ADA. The ADA uses a case-by-case technique to determine if an applicant or worker meets one of the 3 definitions of disability above.

Despite very genuine disabilities, other people with long-term covid are currently ineligible to apply for Social Security disability benefits (SSDI), which by definition require that a user cannot work in any profession due to a condition that will last at least one year.

There are many other people who may not have been clinically diagnosed with COVID-19 but have long-term symptoms of COVID-19, said Terri Rhodes, executive director of the Disability Management Employer Coalition.

The organization has created an expert group that includes medical experts, government officials, and absence and disability management professionals to talk about the demanding situations faced by employers and employees.

The aim is to teach employers and the insurance network about the long Covid and provide rules on how employers can receive and what legislation they want to be aware of.

“We want to make sure that employers don’t just think there has to be a definitive diagnosis, because a lot of times it doesn’t exist,” Rhodes said. “And that’s what a lot of us struggle with. “She predicted that this disease will lead to a major change in the way disability is managed in the United States.

In addition to managing staff like Anderson, who have the ability to paint remotely, employers also want to be informed to accommodate everyone from CEOs and CFOs who have lost some critical thinking and decision-making skills, to line staff who want common breaks for after exercise. discomfort and fatigue.

In some ways, this is similar to how an employer might accommodate Parkinson’s or ALS, but can now deal with dozens, if not hundreds, of other people at once.

“We want to think about how we’ve provided housing, especially for other people in manufacturing, service and retail settings,” Bass said. “How can we provide them with an inclusive environment, so they can continue to be productive, continue to work, continue to contribute, and do all the things that we naturally want to do?”

When the editor and Jane Isay, now 83, contracted a mild case of covid in January 2021, brain fog was a constant companion. He struggled to write more than one sentence or two at a time. It may take you a week in total to write a one-page letter. “It was like I had never written anything before,” he said. While his clients and colleagues were understanding, Isay felt he was letting them down.

Because of his age, many around him suspected the onset of dementia. “I knew in my gut that it wasn’t Alzheimer’s,” Isay said. I am very sad. “

Finally, in May 2022, the fog began to dissipate. ” I didn’t know what I had lost until I found out again,” he said. Isay is now back to writing and editing and is working on her next book, albeit a bit slower than before.

According to Bass, a link between prolonged covid-19 and Alzheimer’s disease is a genuine fear for employers. Researchers at the Cleveland Clinic have discovered an overlap between covid-19 and the non-unusual brain adjustments in Alzheimer’s disease. results, raising questions about whether other people who have been suffering from COVID for a long time might be at increased risk of developing Alzheimer’s disease (AD) or other neurodegenerative diseases over time.

The number of others with Alzheimer’s disease is already expected to increase, due to the long duration of the aging baby boom population. Now, researchers are concerned that the number is much higher due to the lingering effects of the long covid.

As scientists try to sense the long-term consequences of this virus, workers and employers are struggling to navigate the nuances of legislation like the ADA, the Family and Medical Leave Act.

Entrepreneurs and painters will want to work together to find answers that work for everyone, according to Rhodes. Long Covid isn’t just a fitness challenge, it’s also ultimately a workforce challenge. This is a challenge that particularly affects older painters. which can be devastating on many levels, since health insurance is so tied to employment. It’s uncharted territory that requires intelligent communication, a willingness to be flexible, and team paints.

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